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EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association
PARKINSON'S DECISION AID
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I never thought I would be called a ‘carer’. Where can I find support?

Few people ever imagine becoming a carer and it can take some considerable time to adjust. There is no standard template, for each person it is different depending on their individual circumstances and their relationship with the person they care for.  But it is quite normal for anyone taking on this role to experience similar symptoms to the person with Parkinson’s, such as fear of the future, anxiety and depression.

There is help available to support you as your role extends over time:

  • The multidisciplinary team (MDT): Are a range of experts who can provide advice and support to help you maintain independence and quality of life, as well as keeping you in good physical and mental health.  Some of those who may help are your doctor, a specialist nurse, a physiotherapist, an occupational therapist, a social worker, a psychologist, a dietician and a podiatrist for example, but there are many others you may be referred to as and when the need arises
  • Other organisations and groups: There are many other outlets who can provide practical help and advice on various aspects of caring, such as government advice and information services, counselling services, voluntary and charitable organisations, and private agencies.

For more on who can help and how see Carers on Rewrite Tomorrow.